Mike and Rusty worked hard all last week and the weekend, too. They got the outer wall put up, and the remaining doors and storm doors. All that needs to be done on the outside now is the painting. I think we're gonna wait and do all the painting at once, inside and out. Probably over spring break. Then we have to get some carpet put in. And we just might be.....almost......finished......maybe......by that time! Of course, they still have some major ceiling work to do......... Anyway, here are the progress photos from this week. TAnner and Matthew had a great time playing with all the spare pieces and garbage. They built a fort in the front yard!
I absolutely LOVE LOVE LOVE my new front door in the living room. I will not be able to get enough of it. Having a door that actually works. It shuts and locks and everything. And we can go in and out of it! And we can open the door and the sun shines in and it just opens up the entire room. I can just sit and stare out it all day. Jack is totally enjoying it also. He sits and stares. Sits. And stares..........




Rusty got a good deal on a guitar on ebay this week, so he's been a happy camper. He now has TWO purple tiger striped guitars....

Mostly last week was just filled with work, work, work. We have this week of school, then next week is Spring Break - already!
Tanner talked to Brooke on the phone a few times last week. One day he was just a singing away at the top of is lungs on the phone........"The Lion Sleeps Tonight". I asked him what on earth he was doing. He said they were playing American Idol on the phone. He was singing and she was coming up with smarty pants comments to say about his singing like Simon does.
I taught Tanner how to make tea last week. I've been so busy lately and they seem to be going through 2 gallons a day around here. So I showed him how. He was proud of himself. Later that night I heard him tell Rusty........"Hey Dad, guess what? The next time we are out of tea, we don't have to just sit around and wait for it to happen! Now I can make it!!!" Lol he has such funny ways of putting things sometimes.
Saturday night we invited Mike, Cheryl, and Brett - the bass player from our old Big Hair Affair band over for dinner. We all had a nice visit, it had been awhile since we've seen or talked to Brett. He's a good guy.

We are still quite frustrated on Tyler's situation. I've been reading, studying, etc, on the internet for weeks and weeks. And everywhere I look it says that anti-depressants are used to treat cataplexy. Over and over again. I read the success stories. And our doctor has not even MENTIONED the use of anti-depressants. So. I got really upset one day, as I watched him nearly fall down the hill coming from the field house. And I decided to try it on him myself. I had some old medicine I had tried once, but didn't stay with. And I gave it to him. And on the 3rd day of taking it, he had a whole day of school with NO cataplexy attacks. And another the next day, and so on. For a week I had him take them and he was SO excited. But he was still a little scared to trust it, still self-conscious of doing anything. But he was excited. I told him I would insist that the doctor give him some when we went on Thursday. But the doctor would not give him any. And I was too scared of getting in trouble to tell the doctor that I had treated him myself and it worked. Maybe I should have told him. I don't know. Rusty says I either need to be given an honorary medical degree or a prison sentence. But the doctor wants to double up his Provigil as a last ditch effort. But Tyler and I both know that it's not going to work. The doctor does not want to put him on anti-depressants because he is a teenager and all the risks, etc. The doctor said if increasing Provigil does not work then we can discuss a "plan B" which will either be an anti-depressant or a referral to another doctor friend of his who is a really high ranked sleep doctor. So, yeah, more waiting.
I told tyler we're going to do exactly what the doctor says even though we know it's not going to work. And the very next morning, Friday, he BEGGED me to please let him take the anti-depressant just ONE more day. Just one more day of not falling down! So I had to let him. Then today, Monday, he begged again but I told him no. We're going to do at least 2 weeks of what the doctor says - knowing it won't work - but we have to show him I guess. And don't worry, Mom, I hid the medication away good! But it's hard not to give him what I know is helping him. Very difficult situation for me right now.
What would YOU do????? lol
No diet seems to be working for me lately. The fact that I cheat about every 3rd day I'm sure has plenty to do with it. It's just not as easy as it was 3 years ago. I've put back on about 20 of the 70 I lost. And I gotta STOP. So maybe I"ll figure out something on that over spring break.
I've got another program at work this week. I think this time I might try to take some pictures to post. It's hard to remember to when I'm the one directing it. But I should try to.
I know I"m leaving out tons of great stuff from the week. But that's about the sum of it.
1 comments:
I understand the frustration Tracy and I am as frustrated as you... I think maybe I need to go with you to the DR. next trip and see if we can't gang up on him, lol. I think if next visit does not produce some positive signs then if he don't bring in another DR, maybe we should. I do hate to see Tyler on anti depressant the rest of his life thou. Would be GREAT if this would just go away this spring like it appeared last spring.
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